The dentist
is probably the worst place you can imagine to have to take a child with
autism. The same is true with many
typical kids and even some adults.
If you talk
to older people about their childhood experience at the dentist, before high
speed drills and the like, it was more like torture. Times have changed, it is not just better
equipment, but (some) attitudes have changed.
For someone
with autism, going to the dentist should not have to be a terrifying experience;
people with autism actually have a high pain threshold. True they have lots of sensory issues, but it
seems to be the fact that they do not understand what is going on, that is the
real problem.
A better way
There exist
some very child-friendly dentists who are more than a match for a child with
autism. They can achieve what seems
impossible, a calm and cooperative dental patient, who will sit back and let
the dentist do his work.
One such
dentist has even made a training program for other dentists to show how to
achieve this. In effect, it is a very
practical ABA lesson for dentists. The
dentist is called Dr Tesini and his program is called D-Termined and he is indeed
determined to succeed.
Here is clip
from Youtube.
Dr Tesini
even teamed up with an autism charity to make a DVD of his method. It used to be free but now costs $13.
Here is a
link to the foundation that funded the program.
I acquired
the DVD 6 years ago, but could not find any local dentist interested to apply
the method.
The method
is great because once the child has got used to the nice friendly Dr Tesini and
gone through all the steps, he is apparently then able to “tolerate” the less
friendly regular dentists, for future dental visits.
In some
special schools they have a dental chair for the kids to practice on, which as
another great idea.
Monty at the Dentist Five years ago
We have a
nice friendly dentist, but I think he felt from the start that working on a
child with ASD was going to be too much.
We made a few very brief visits when Monty was four and five years old
and even brought along the Dr Tesini D-Termined DVD, but this really just showed how difficult a
task lay ahead if any actual drilling and filling was required.
It was never
really clear whether Monty had toothache or not, since he could not verbalize
the problem. So sometimes if he was
behaving aggressively, we might think that he had tooth problems. Later things would calm down and we would
forget about teeth and dentists.
In the end I
had to find a practical solution. Were
we live there seemed to be no good solutions;
generally people with ASD just have rotten teeth. A State hospital clinic did in theory offer
dentistry under full anesthetic, but it looks like the hospital block of a
gulag and there was a three month wait anyway.
Private dentists are not allowed to give sedation or full anesthetic, for safety reasons,
just local anesthetic.
Eventually I
found a solution in a neighboring country where you could have dental work
under general anesthetic, in surroundings that did not look like a prisoner of war
camp. Aged five, Monty had his four fillings and one extraction under full anesthetic
with a German dentist and a Hungarian anesthetist. The first part involves an injection into a
vein in the arm, even this little step involved a great deal of kicking and
screaming (Monty and his Mum).
So
as not to repeat this unpleasant, and very expensive, experience too often, I
stopped Monty drinking so much fruit juice and came up with a special tooth
brushing regime.
One
of Monty’s first words, aged about 40 months was “juice” and so pleased were
people to hear him use any word, that juice is what he got. In fact when he said “juice” he really just
meant he was thirsty, water would have been just fine. The acidity of fruit juice rots milk teeth. Also, at the start of an ABA program, or even PECS program, there are a lot of edible reinforcers (candies) involved; great for speech, but not your teeth.
The
teeth brushing regime involved brushing first with a manual brush and then
again with an electric tooth brush. This
way there is more chance of not missing anything.
Monty at the Dentist Five Years On
Having not
had any dental work for five years and still not having found a dentist who
wanted to learn how to treat a child with autism, I was faced again with the
undesirable option of full anesthetic. I
hoped that in the subsequent five years there might be some options closer to
home.
While it
seems that only hospitals can give full anesthetic, one of the small private
medical clinics that also do minor surgery, has started to offer
dentistry. So I thought that if they
have an anesthetist available for the minor surgery,
why can’t the dentist use him?
A
few phone calls later, it did indeed seem to be possible. It clearly was not something they usually
did, but the dentist did not think it was a crazy idea.
So
last week Monty, myself and his assistant, who teaches him at home in the
afternoon, turned up at the clinic.
Expecting to see an older male dentist with a serious face, I was very
surprised to see a small slim female dentist and her smiling assistant. It was as if we had stepped in to Dr Tesini’s
training video.
All
happy, smiling and fun, the dentist let Monty play with all the buttons and
bits of equipment. She made balloons out
of surgical gloves and generally made friends with her new patient.
Her
attitude was “why would I need anesthetic to treat such a nice boy”. She gave him an examination, with Monty being
surprisingly compliant. She concluded
that his toothache was caused by his four rear permanent that have yet to
emerge. One of the five year old
fillings in his milk teeth looks a bit poor, but the X-ray showed that it is far
from the pulp of the tooth. The tooth
should fall out before the filling fails.
In
fact the only intervention is protective fissure sealant on four permanent teeth
and ultrasonic de-scaling his front teeth.
I
say “only”, but this still needs him to keep still with a drill inside his
mouth and not bite the dentist or her to cut his tongue.
So far so good
After six visits, three teeth have their fissure sealant and one more visit remains.
Monty
is friends with the dentist and is dancing to the music in the waiting room as
he leaves for home.
Who
could have imagined such a surprise at the dentist?
It's really inspiring to see that technology has adapted to people with special needs. I agree that it was a nightmare to bring a kid with autism to the dentist before. The good thing is that nowadays, dentists, especially those trained to service kids, also cater to children with special needs; thus, making the whole experience easier for both the child and the parents. :D
ReplyDeleteStephen Malfair @ Dentist Kelowna
Nice story here! I remember my first ever visit to our family dentist! I will not forget that lovely moment.
ReplyDelete