School for
Monty, aged 11 with ASD, did start a couple of weeks ago but then a nasty virus
swept through school, sending him back home again.
To recap,
Monty attends a very small mainstream international school with his own
assistant. The school uses the English system. To get the equivalent US grade, you subtract one from the English year. He comes home after lunch and
then has one-to-one, ABA-inspired, home schooling for another three hours. In
school holidays he has eight hours a day of ABA-inspired one-to-one home
program. This has been going on for
seven years so far.
Following
all these years of ABA, schooling at home and 20 months of his PolyPill he is
now able to learn at school, follow the rules and interact with staff and other
children. He now initiates play with the
other kids.
When his
assistant leaves at 2pm, the teachers now want him to stay by himself for
afternoon classes like art and physical education. This is quite a change, until quite recently
the teachers did not want him there if his assistant was unable to be at school,
or got delayed in traffic.
The clever
move turned out to be holding him back two years, a while back; so that he is now
in a group of 8 year olds. This makes
sense for many reasons; most importantly, he is at the academic level of
classmates. Since he did not speak a
word until he was three and half years old and for most of 2012 he was raging
and regressing, it also makes sense. In
“learning years” he is, at best, a seven year old.
Until a
couple of years ago, all learning (speaking, reading, writing, numeracy) was
acquired at home; school was just for practice and socialization.
Socialization
is the main point of inclusion, but even that needs a lot of managing. Socialization without any learning does not
seem a clever choice.
The Wider World
In some
countries there is a very developed system of Special Education, with the US
being far ahead, partly because it diagnoses so many kids to have a special
need.
Most other
countries now seem to have adopted elements of what is seen as best practice,
like having an IEP (Individual Educational Plan) and some interpretation of “inclusion”. Unless the IEP is well thought out, it is
just another stack of paper. If
inclusion is not accompanied by plenty of training and supervision, the results
will not be good.
Given the
resources for 1:1 education, much can be achieved, but this is rarely going to
be possible; only very expensive private schools or home schooling can provide
this.
In a large
inclusive classroom, I do not see how children with classic autism can make any
academic progress, except with the help of a very good 1:1 assistant (but when is there 1:1 time in a noisy inclusive classroom?). In many inclusive schools, the teachers have had
no special training, and quite often, neither has the 1:1 assistant.
Parents
often make great efforts to avoid their child going to special education, due
to the perceived stigma. Readers from
the US may find this odd, but in most of the world autism remains hidden. People turn down free intensive early years
support, preferring the child to be with typical children.
I see plenty
of parents writing commenting things like, “I wish the school would teach my
child to read and write”. Without
individual tuition at school and/or home it is easy to see how such kids will
not get far at all.
From what
appears in the media, most people are not happy with schooling for classic
autism. If you want better, you will
have to take on much of the job yourself.
There are plenty
of good ideas you can use.
Extended School Year and Duration
In some
countries kids with autism have an extended school year, i.e. very short
holidays. This seems a very good idea
for both the kids and the parents. It means
that the learning year is more like 11 months long, rather than the typical 9
months.
In most developed
countries school finishes when you are 18.
In the US special education in high school continues to 22. That is quite a big difference, which brings
me on to the next point.
Final Academic Level with Classic
Autism
I was
interested to see what range of academic levels is typical for people with
classic autism to achieve when they finish their school education. It is very hard to find this anywhere and I
only found one range, which was between 2nd grade and 6th
grade, on leaving “high school”, using the US system. This seems plausible.
It is clear
that many special schools are really focused on living skills rather than
academics.
If you
manage to progress academically all the way through school, then it must have
been a case of High Functioning Autism or Asperger’s.
What Monty did
Monty, now
aged 11 with ASD, started out un-able to learn in the conventional sense, like
most kids with classic autism.
Using an
ABA-inspired home program, he did gradually start to learn. He went to school for socialization and fun.
We have no
external agencies, Education Authorities etc. involved in Monty’s
education. We have a nice, responsive, mainstream
private school, which has always tried to help, although they have no special
needs resources or knowledge. The class
sizes are tiny; this year there are 13 in the group.
From the age
of about 10, things changed sufficiently for school to be about learning. By that stage he had acquired the academic
skills of a typical 7-8 year old, based almost entirely on his supplemental 1:1
tuition.
The home
program continues and will be needed for years to come.
Monty has
three school years left in Primary before moving on to Secondary/High School. Primary school is a nice place to be if you
have ASD, the same may not be true for Secondary School.
In the UK system, Secondary school starts when you are 11 years old. In other countries it starts much later; where we live Secondary school is normally from 14 to 18 years old.
In the UK system, Secondary school starts when you are 11 years old. In other countries it starts much later; where we live Secondary school is normally from 14 to 18 years old.
Summertime
is no longer developmentally lost, due to the odd effect of allergy and some key
neurological autism issues have been identified and treated; more are likely to
follow.
I am
optimistic that we will see three years of uninterrupted development, twelve
months a year. Every calendar year
should be a “learning year”.